It's really quite funny, after all these years. When I was growing up, I (as all children do) had many ideas about what I wanted to be. No matter what future career I showed an interest in, my mother found a way to discourage me. It wasn't until I was married, with children of my own, that I learned why.
Mom had always wanted to be a nurse, but wasn't able to continue her education. The family had pulled her out of school as soon as she was able to help on the farm. Apparently that disappointment had stayed with her for her entire life. As I grew, she started to project her dream onto my life choices, in true passive-aggressive style. Today, Mom would be proud.
I have spent most of the last 4 years learning about liver disease, HCV, post-transplant care, neuropathy, diabetes, CBCs and Chem7s, enzymes and electrolytes, INR, BUN, and creatinine. Over time, I have monitored his condition and adjusted certain medications, helped him from the bed to the bathroom, tested blood sugar, given any number of shots from Procrit to pegylated interferon, bathed him when he couldn't, and fought with doctors over his treatment. When Mark was placed on a restricted diet, I learned how to keep the amounts of protein, sodium, and potassium in his diet within the very narrow allowable ranges; basically, relearning how to cook in order to keep him healthy enough to be considered for a transplant.
Now, although there won't be any chemotherapy, we're learning new tricks again. Blood thinner injections twice a day, insulin 3 times a day before meals - adjusting the amount given based on his blood sugar levels at the time, and relearning how to cook - again. While the 'experts' were in fairly close agreement on the levels of sodium and protein allowed on a liver-failure diet, the opinions are all over the board on a diabetic diet.
Some say no carbs; some say no simple sugars, but carbs are okay. So, we live and learn, and tweak and adjust until we find the right balance for Mark's system and condition. It does help that we have insulin in the house now. While important, his diet is less of a critical issue - although still unable to have cake and ice cream, etc., there's a little more leeway in level of carbs in a particular meal. That helps a lot, believe me.
So, as I look back on the last 4 years, I can honestly say - I never thought I'd be playing nurse or that I would actually be pretty good at it. Mom would be so proud.

Don't forget to visit JMark Afghans and My Gallery at Zazzle
We also have a page on Squidoo that supports the Genocide Intervention Network.
We look forward to seeing you online.
God Bless!
Jules
Labels: Education, Personal